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Documenting Pressure Sores
Salvini, a high quadriplegic injured in a 2004 skiing accident, says years of pressure sores and depression changed his approach to care. After another sore appeared in 2014, he photographed it each morning and night to monitor its progress. He later extended that documentation to other routines, arguing that his own observations became especially important amid frequent caregiver changes.
Tracking Bowel and Urinary Patterns
Following hospitalizations for suspected bowel impaction, Salvini began recording food and water intake, bowel movements, unusual observations and other notes in a spreadsheet. He says diet experiments did not reveal a consistent bowel trigger, but the records helped him associate lower urine output with recurring urinary infections. He reports that increasing his water intake reduced infections, while emphasizing his personal experience rather than presenting a general prescription.
Learning Through Community
Salvini credits people in the mobility-disability community with ideas about skin checks, seating, positioning, nutrition, exercise and emotional support. Advice from peers led him to pursue a cushion, physical-therapy adjustments and dietary changes that he says improved his routines. He also describes monthly Here and Now Project gatherings as a source of perspective and connection. Salvini says this systematic approach has supported 12 years without a pressure sore and helped him focus on family and nonprofit work.
